By Nora Hakramaj @norahakramaj
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Videographer / director: Claudio ‘Fiore’ Fiordellisi
Producer: Nora Hakramaj, Ruby Coote
Editor: Marcus Cooper
Nathan Hrdlicka, 34 from Santa Fe, New Mexico, has bilateral PFFD (Proximal femoral focal deficiency) type D - which means his knee bones are directly beneath his hip bones.
As well as being only one in 25 people with the condition, he is the only one in the world who is able to walk.
Despite his condition, Nathan, is in a loving relationship with his girlfriend, Chelsee Stuart, 19 who is at least a foot taller than him.
Due to the location of his knee bones, Nathan’s height is 4ft 6in, however doctors have said he would have grown to be over 6ft 4in.
Nathan said: “There’s only 25 people in the world with my condition. It makes me feel pretty unique.
“As far as I’ve been told I am the only one who has figured out how to walk.
"I’m not really made to walk so everyday I choose to do that and it comes with a pay off. I’m literally walking on the tips of bones so through out the day that eventually wears me out and brings pain on."
The couple met on Facebook on a healing page and hit it off immediately - despite Chelsee's initial problem with their height difference.
Chelsee said: "When we first met I did think the height difference was going to be a sort of problem because this was my first time really being with someone that shorter than me.
"It took us a lot of time to really learn what works and what doesn’t work but eventually now everything works.
“One of the biggest challenges that we faced together is I’m a super - super physical person.
"I like to go hiking and exploring in the woods and so it would be awesome to do that with my best friend but since his endurance is tough on him, he cant really keep up. I have to find other people to do those activities with.”
Nathan added: "Chelsee supports me emotionally as a friend in a way that I never had in my life.
"When I am sick she is there making sure there is everything she can do to make me feel better. Whether it is just to put a smile on my face or a glass of cold water. “
Strolls on the streets often become longer trips then expected with people curious about his appearance - even though some just ask him questions, not all have nice things to say about his condition.
Nathan said: "Some of the comments I get are people calling me a midget a lot, which is an uneducated thing. They also pick at the height thing.”
Chelsea said: “Some people are very curious and give us these looks like 'What is going on' just because of our height difference and then a lot of people are drawn to us.
"We both are very energetic and vibrant together, so people are more curious and they come up to us and ask questions. They eventually see the love that we have in the friendship that we have."
While there is no treatment or cure, Nathan uses holistic medicine to help him cope with the pain that comes along with the condition.
He explained: "This is the only true medical system that's actually stood by me to try to find help that isn't just medicine based.
"This helped everything from my emotional state to being mentored at the centre. I’m trying to through, my own will and body, to find answers for healing and strength."
Not being covered by insurance and no longer receiving disability checks, Nathan and Chelsee started a Gofund Me campaign to try and raise $25,000 to cover any medical costs and help keep them on their feet.
Along with their jewellery business, the loving couple are even planning on opening up a healing centre in Iceland to show people different kinds of holistic medicine that can be used for pain.
Nathan said: "My hope for the future is that I get this condition a little bit more under control.
"I just really want to be able to help people. I want to be able to use my experiences and story to help people get through the hard times that they are having so that they can heal.
"I don’t see myself as different. When people come up to me that’s the first thing they are seeing is my disability.
"My disability is something that doesn’t define me.”
To donate to Nathan’s campaign visit: https://www.gofundme.com/man-with-rare-condition-needs-help