By Sanjay Pandey & Amanda Stringfellow @amanda_l_s
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Videographer / Director: Arun Prakash
Pictures: Shiv Munda
Producer: Sanjay Pandey
Editor: Kyle Waters
Aditya Mishra suffers from a rare condition which has blinded him in one eye - and is having a series of operations to remove the mass which has obscured his face.
The child, from Ramnagar Sodhala in Jaipur, was born healthy but over time the expanding tumour has deformed his features.
The young boy is often taunted with terms like 'ghost' or 'monkey' and other children run away from him in fear.
Aditya’s mother Neetu Mishra has had the painful experience of seeing her son live an isolated and increasingly difficult lifestyle.
Neetu said: “He becomes very sad at times. If he goes out to play with other kids, they get scared.
"My worst fear is what will we do if his facial tumour grows further or it simply bursts? What will we do then?"
Shortly after his birth Neetu and Aditya’s father Niraj Mishra noticed that his right eye was slightly bigger than his left.
Neetu said: “It was very painful, I was wondering as to why my son was suffering from such a condition.
“We helplessly saw his condition deteriorating. His eyes were disproportionate. I could see his right eyelid growing and covering his eye.
“My worst fear was that it might affect his vision - and right under our watch, he lost sight in his right eye.
“He gets headache very often. He often complains about pain near his right forehead. At times, he would not eat for days. He would not even take water.
He would just complain about pain and keep crying.”
Despite his condition, Aditya is desperate to go to school like his younger brother, but has been told he will scare the other children.
Aditya’s father Niraj is a warehouse worker, and has sought medical advice to help his son.
Niraj earns a small salary and already finds it difficult to keep a family of six people, including his parents and two children.
Neetu said: “The doctors told us to get the CT scan, MRI done. We got the tests done but that was of little help.
“The doctors said they could not operate on my son - that there is no cure for his disease.
Niraj added: “We felt sad. We were worried about how we would be able to arrange for his treatment.
“We took him to Benaras Hindu University Medical College, we left no stone unturned, but there was no positive response.
“We are worried about his future as to how he could lead his life with such deformity.”
With the help of family and friends the community raised the money for Niraj to have his first operation in November which cost £1000.
It will take a total of six operations and over £5000 to completely transform his face - and the family are appealing for help with funds to get him the medical treatment he desperately needs.
Doctor G S Kalra at the SMS Medical College in Jaipur, who has examined Aditya, believes he is suffering from a disease called Plexiform Neurofibromatosis - which could be treated with a series of operations.
This means all the structures in the area of the tumour, especially the nervous tissue, is enlarged and keeps on growing until the child grows up.
Doctor Kalra said: “He has got a huge neurofibromatosis that is affecting the whole of his right side of his face, including upper eyelid, lower eyelid, nose, ear, all the areas are affected.
“This is a critical problem - since the whole of the face is involved, it requires multiple operations in phases because there will be more bleeding while operating.
“There is also anaesthesia risk involved during the course of operation. Usually, we cannot treat him in a single operation, the child has to undergo multiple operations.
“The initial operations are larger but then the smaller operations like correction of nose and ear need doing too.”
Aditya will need treating every four to five months, and the complete process will take between two and three years.