By Danny Baggott @Dan_Baggie
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Videographer / director: Adam Gray
Producer: Danny Baggott, Ruby Coote
Editor: Beth Angus
The Nevus is also on the inside of Lucas’ body, with other symptoms including Hydrocephalus, which needs to be monitored every three to six months, and Neurocutaneous Melanosis (NCM), which are lesions on the brain.
The Nevus on Lucas’ brain led to the biggest scare of his life so far, when he was rushed to hospital in the summer of 2018 with a tumour.
But despite the constant health scares and bullying that Lucas has to endure, he always comes out fighting and dreams of becoming a professional racing driver.
Lucas told Barcroft TV: “I’ve lost count of how many surgeries I’ve had up to this point.
“The Nevus is all over me. It means I can get brain masses easier and that can lead to more serious problems.
“But I don’t let it stop me from doing anything. I can do everything that a normal kid can do. I just have some roadblocks here and there.”
Lucas’ parents, Whitney and Devon Starr, have supported their son every step of the way along his turbulent medical journey.
And they both admit it was a very scary time when Lucas was born, with doctors not being able to identify what was wrong with their son.
Whitney, 33, said: “The condition usually starts in the first eight to 14 weeks in the womb.
“When he was born, doctors didn’t know what he had. Basically, he looked like charcoal burnt.
“Later on, we were told the Nevus covers some of his brain and some of his spine. It was a real struggle and it was really scary.
“Since he was three months old, Lucas has had up to 30 surgeries.
“He has other consequences to live with too. NCM that can cause seizures being one – and that resulted in the tumour he had this summer.”
Luckily, Lucas and his family were able to catch the brain tumour when it was still very small in size and hadn’t developed into cancer – otherwise, the outcome could have been much worse.
Devon, 35, said: “They pulled a very small square bone from his skull.
“As soon as they removed it, they could see it. They didn’t have to go in too deep thankfully.
“But it was all so tough. What happens in the ICU, stays in the ICU. I’m just so pleased he had his father there to pull him through.”
At times, Lucas has struggled with his school life and being out in public, often being the subject of bullying and people staring at him.
“Whilst I’m out in public, I don’t like when people stare at me,” Lucas said.
“I don’t know what they are thinking about me and the way I look and stuff.
“Some of the time, I don’t enjoy going to school because kids bully me. I don’t know why, because I’m the same as everyone else. I just look different.”
Whitney added: “Lucas is a strong-willed kid. He came out as a fighter and I think he will go out that way too.
“Since he was born, people always stare at him. They don’t understand. They think they can catch it or something.
“It’s hurtful and traumatising for children when they get made fun of.”
But despite the bullying and the stares, Lucas and his parents remain positive about his future.
Devon said: “We just enjoy every second with him.
“Maybe because of what’s going on with him, or maybe not. I just see it as more of a reason to live life and just breathe that into him as much as we can.”
Whitney added: “We are so proud of Lucas. We are so amazed with him every single day.”