By Shannon Lane @Shannonroselane
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Videographer / director: Paul Stringer
Producer: Shannon Lane / James Thorne
Editor: Sonia Estal
Daisy-May Demetre, from Birmingham, UK was born with a condition called fibular hemimelia, a birth defect where part or all of the fibular bone in the leg, is missing.
In Daisy’s case she had one tiny fibular bone in her right leg and on the other side it was completely missing.
Without fully developed fibulars, Daisy’s feet also didn’t grow properly.
Her dad, Alex, told BTV: “The feet never formed properly, it came like a ball - the other one very flappy and sort of unusable.”
With Daisy's balance and mobility affected, Alex and Claire (Daisy’s mum) decided the best option was for their daughter to have below the knee amputations on both legs.
Alex said: “She could have a life with the legs that she was born with but it’s not a life to be honest, she would not have been able to do anything; she would not have been able to do what she is able to do today.”
The family had to wait 18 months for Daisy’s surgery date. Unfortunately Daisy had issues with aftercare and recovery from her operation.
Alex said: “When she had her operation it was handled poorly.
“Within five minutes of the operation the plaster cast on the end of the stumps had come off and they had to hold her down to try and put bandages on her.
“To be honest, I don’t like thinking about it. The pain she was in, it was horrendous.
“It was really rough looking back on things from now to then. Now it's really positive and its all about the positive side now and how good we are doing, but no one sees the bad times and whatever else we went through.”
Daisy lives with her mum, dad and three siblings - and her resilience has influenced all of her family.
Alex said: “It was a depressing time but now it’s down to her, and down to what she is about, how she changes people around her, the way she has changed me, she changed her brothers and sisters, she changes other people.”
After her operation, Daisy was fitted with prosthetic legs, and learnt to walk, run, jump - and more in them.
Her dad said: “She has got two sets of prosthetics. She has got the springs or the blades, they are like activity blades so she can go out and do what ever she wants to do on them.
“And then she has got the basic ones, which she wears for school and stuff like that.
"To be honest you can put anything on her now and she will adapt that quick; she just puts something on and she will be doing cartwheels on them in about five minutes time and you think 'wow it’s amazing’.
“She wants to do what other people can do and that is what inspired her I think. To be able to push on because once she started walking that was it, she was up and away."
Despite looking different from her peers, Daisy doesn’t let this hold her back and isn’t phased by her unique legs.
Her dad said: "I ask her all the time to be honest about being different, her answer is that she doesn’t care and you know what, that's exactly how I brought her up to be.
“Its good to be different, to stand out and it doesn’t phase her, it really doesn’t and it is amazing.
“She is inspirational, she is full of energy, nothing will stop her ever in life.”
Alex set up an Instagram account for Daisy, and following the attention she received they applied to Zebedee Management, a modelling agency for diverse models.
Although modelling wasn’t something the family had ever thought about for their daughter Alex is convinced Daisy has a bright future.
He said: “She was definitely born to do something."
"It sounds stupid (and there are thousands of people who don’t believe what I say) but she is going to be the most famous double amputee on this planet and I believe that to be true.”