By Haziq Qadri @haziq_qadri
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Videographer / director: Kamran Bashir
Producer: Haziq Qadri, Ellie Winstanley
Editor: Ian Phillips, Sonia Estal
Dubbed ‘solar boys’ by local media, Mohammad Shoaib, 13, and Abdul Rasheed, 9, are full of energy during the daytime.
But once the sun goes down they both collapse – and are not able to talk or move until the sun rises the following day.
The boys' condition has baffled the medical community in Pakistan, with doctors left desperately trying to diagnose their condition.
Doctor Javed Akram, vice chancellor at the Pakistan Institute of Medical Sciences (PIMS), said: “This is the first case of such an illness across the world.
This is an extremely rare condition. No doctor in this world had even heard of this condition before.”
“During the daytime, they are full of life. They go to their madrassas (religious seminary) and play cricket. But with twilight, life also leaves them, leaving them lifeless and paralysed.
"They spend their time waiting for the morning when they can embrace life again.”
Pakistan Institute of Medical Sciences says it could take another six to eight weeks to begin medication. The samples for DNA analysis have been sent to the United States and the process can take over six weeks.
A medical board of 19 health experts in Pakistan recommended 232 tests and DNA analyses for the kids.
Doctor Akram said: “We carried out a series of genetic tests. The primary reason behind it is the fact that their parents are first cousins.
"Another important distinction is the fact that their sister doesn’t suffer from this condition. It is only the male children who are affected by this.
"Consequently, we have taken many genetic tests - and are still taking them - to establish how this is an X-linked recessive disorder expressed only in males.”
Researchers in Pakistan are collecting soil and air samples from the family's home village.
Father of the ‘solar boys’, Mohammad Hashim, comes from a village near Quetta, the capital of southwestern Baluchistan province.
He and his wife are first cousins, while two of their six children died at an early age.
He said: “My daughters are fine. It’s just the sons. I have another son who does not suffer from this.
“I think they get energy from the Sun.
“They don’t complain. They are not aware of the condition. They just enjoy their life. I know they are bound and have physical limitations. As a father it hurts.”