By Danny Baggott @dan_baggie
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Videographer / director: Jefri Tarigan
Producer: Danny Baggott, Ruby Coote
Editor: Thom Johnson
34-year-old Andriadi Putra has been told by doctors that he was born with Neurofibromatosis, a rare genetic disorder that causes tumours to form on nerve tissue.
Andriadi, who resides in Medan, Indonesia, finds it difficult to walk and is in pain on a daily basis.
The tumours have become bigger and bigger over the last two years, but Andriadi and his family do not have the funds to source the necessary treatment at this point in time.
Andriadi said: “It’s difficult for me to walk and the tumour has become much bigger.
“It’s made me scared.
“10 years ago, I worked at a building material store and I delivered some material to a consumer.
“He had a family member who was a doctor. The doctor saw my condition and said this kind of surgery needs a lot of blood donations so it will be more expensive.
“But due to the low financial condition of my parents, we decided not to go ahead with the surgery.
“I haven’t consulted with a doctor since this time 10 years ago.
“The tumour has been weighted around 20 kilograms on my stomach and chest. But not the whole side of my body. I estimate the weight of them all is around 30 kilograms.”
Andriadi was born with just a small blemish on his face that he and his parents believed to be a birthmark.
He said: “Nowadays, it’s become a large tumour and has grown with my age.
“I often have a shortness of breath and it’s made it difficult to do any activity or to go outside.
“As an example, walking from my bedroom to the bathroom is difficult. When I go to bed, before I fall asleep, I must hold and move my tumour to feel comfort.
“I haven’t been able to work for two years and I can’t have any hobbies with this condition. Recently, to kill time, I play with my phone. At least that makes me happy.”
Andriadi’s father, Ismed, added: “As parents, there is nothing we can do with his condition.
“We only provide his daily need and support to him. Nothing more.”
Andriadi has received great support from his family and friends – something he remains very thankful for.
His mother, Herida, said: “He is a good boy; friendly, polite and diligent. He likes to help his mother at home, such as washing clothes.
“But now his condition has become worse, he can’t do it anymore.”
Andriadi added: “My friends also give me support to face this condition, they advise me to not be low with self-confidence and to keep on praying.”
But Andriadi’s confidence has been impacted over the years, especially when out in public with people staring and pointing at him.
“I’ve never seen people like me,” he said.
“I think my confidence is 50 percent low down. When I go outside and meet people, they stare at me and some of them look displeasing at me with an unpleasant reaction.
“At the beginning, this condition made me desperate and disappointed. I was comparing my condition to others and it made me sad.
“But recently, I think positively. Maybe this condition is a gift from Allah – I must be patient and not forget to pray.
“I think I have a bright future to make my parents and my family happy.”